Arshaan & Jahan

Crazy in love with superheroes, the Adam Boys are witty, charming, and a lot of fun. Even though Jansen type metaphyseal chondrodysplasia (JMC), a skeletal disease, has bent their bones and left them in constant pain, they are forever smiling and living hero-sized lives.

Older brother Arshaan is 8 years old. He's a sensitive soul, an old man in a little body. He aims to please and has a genuine interest in the world around him. He loves watching Ben 10 and Spiderman when he isn't drawing comic books about his little brother —Super Jahan!

Six-year-old Jahan simply adores his big brother and looks to him for comfort and guidance in everything he does. He shares Arshaan’s love for superheroes, and the two boys spend endless hours dressing up as their favorite comic book heroes.

~Neena, Arshaan & Jahan’s Mom

Jansen Type Metaphyseal Chondrodysplasia

Jansen type metaphyseal chondrodysplasia (JMC) is a very rare autosomal dominant skeletal dysplasia characterized by short-limbed short stature (due to severe metaphyseal changes that are often discovered in childhood by imaging), waddling gait, bowed legs, contracture deformities of the joints, short hands with clubbed fingers, clinodactyly, prominent upper face and small mandible, as well as chronic parathyroid hormone-independent hypercalcemia, hypercalciuria, and mild hypophosphatemia.

Artist: Jennifer Cahoon