Victor
Victor is our little superhero! He is a fighter and is amazing despite everything up against him. Victor loves pizza, cake, cookies, running and jumping, me, and his mommy. He is a total momma's boy. He is the sweetest little thing you could ever meet, even when he has tantrums. He is a fighter and never gives up. He has no fear. He will climb and jump off anything he can, keeping us on our toes, to say the least. He jumps off furniture, beds, slides—anything he can climb on to. He loves cars and trucks too. He could push cars around all day.
~Jerry, Victor’s Dad
CLOVES Syndrome
CLOVES syndrome (CS) is a recently described rare disorder characterized by tissue overgrowth and complex vascular anomalies. CLOVES stands for congenital lipomatous overgrowth, vascular malformations, epidermal nevi and scoliosis/skeletal/spinal anomalies. CLOVES syndrome may affect the soft tissue, blood vessels, bone, and internal organs. The manifestations are very varied, ranging from mild to severe anomalies. These abnormalities are typically present at birth. The most common features are fatty masses, vascular anomalies, abnormal extremities, spinal anomalies, skin birthmarks, and kidney anomalies.
Artist: Phyllis Pesaturo