Kalen & Kyan

Kalen and Kyan are both affected with spinal muscular atrophy type 2. At 5 and 4 years old, they are the bravest little heroes we have ever known. They both attend school in their power chairs and love superheroes and eating pizza! We appreciate each and every moment we have with them and smile every single day as a family.
~Sierra, Kalen and Kyan’s Mom

Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) refers to a group of inherited conditions that affect the muscles. The severity of the condition, associated signs and symptoms, and the age at which symptoms develop varies by subtype. In general, people with SMA experience progressive weakness and atrophy of muscles involved in mobility, the ability to sit unassisted, and head control. Breathing and swallowing may also be affected in severe cases. SMA is generally caused by changes in the SMN1 gene and is inherited in an autosomal recessive manner.

Artist: Ian Gaudreau