I have been suffering from severe Crohn's since I was 7 years old. Since my ostomy surgery I am still not stable. I also suffer from ankylosing spondylitis, Psoriasis and other pathologies.
The symptom I experience the most is the daily fatigue which impacts my social and professional life. I try to take advantage of the small, simple moments in life when I can. The physical and moral pains are difficult and I try to live from day to day to tell the truth. I have undergone many treatments during all these years and their consequences.
I experience the impact of my conditions almost everywhere the colon, rectum, anus and in my muscles and joints. I have had an ileostomy. I have a large amount of skin damage. I also have had an ovary and all of my thyroid removed. I have undergone several operations including abscesses, fistulas (setons and drains still there), colon resection, ileum, stoma etc.
My piece is a photo/self-portrait that I made. I think that the green symbolises nature and hope.
I enjoy photography, travel and dance (when I can).