France, Crohn's disease
667 x 1000 x 20 cm (h x w x d)

I have been suffering from severe Crohn's since I was 7 years old. Since my ostomy surgery I am still not stable. I also suffer from ankylosing spondylitis, Psoriasis and other pathologies.

The symptom I experience the most is the daily fatigue which impacts my social and professional life. I try to take advantage of the small, simple moments in life when I can. The physical and moral pains are difficult and I try to live from day to day to tell the truth. I have undergone many treatments during all these years and their consequences.

I experience the impact of my conditions almost everywhere  the colon, rectum, anus and in my muscles and joints. I have had an ileostomy. I have a large amount of skin damage. I also have had an ovary and all of my thyroid removed. I have undergone several operations including abscesses, fistulas (setons and drains still there), colon resection, ileum, stoma etc.

My piece is a photo/self-portrait that I made. I think that the green symbolises nature and hope.

I enjoy photography, travel and dance (when I can).

Exhibited by:

Expression Days

Other works by Julie

Achalasia , Tariq Rahman
Beyond the Diagnosis

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